Families with children suffering from rare Usher 1F syndrome get fresh hope of finding cure

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Feb 13, 2020 | News | Jerusalem & Area
Families with children suffering from rare Usher 1F syndrome get fresh hope of finding cure

Families with children suffering from a rare genetic disease that predominantly affects Ashkenazi Jews and causes severe deaf-blindness have been given fresh hope of finding a cure.

A US-based non-profit foundation seeking to research Usher 1F syndrome is one of 30 patient-led organisations to receive a $450,000 (£347,000) grant from the Facebook chief executive Mark Zuckerberg.

Full Story (The Jewish Chronicle)


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